Living with Type 1 Diabetes

PWDC16 in Nottingham

It’s been a week since we’ve arrived home from PWDC16 (People With Diabetes Conference 2016) and I’m only just finding the time to write a blog about this fab conference so I’m way behind everyone else. But hey ho, here goes.

I was thrilled when I was informed that a generous donation had been made to the GBDoc meaning that the PWD conference in Nottingham was now free of charge. Disappointingly, when the information came out about the conference we just couldn’t afford for the two of us to attend (me and the hubby Allun that is) on top of travel and hotel expenses. We had been to last years first conference and had really enjoyed it. As soon as I learned of the change I text Allun asking if we could now attend, his response was “well if  you can find a hotel we can go”. So the computer was fired up and I was excitedly looking for somewhere to stay.

Time soon came around for the weekend away. I think we were both looking forward to it.  We left on the Friday evening after work and planned to stay over till the Sunday.  This year there were to be two days of the conference instead of one.  I was really looking forward to meeting up again with some of the people we had met last year and also some others who were attending for the first time. People who I have connected with via Twitter initially through the #doc (Diabetes online community) and #GBDoc and later on through Facebook.

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And were off…

We arrived in Nottingham around 7.30pm, got settled in our room then went down to the restaurant for some food.  First time in a long time that we’ve sat at a table for 2 (without 3 kids basically).

 

Day 1

Next morning we made our way to Colwick Hall, a very impressive building.  WE spotted a few familiar faces in the car park said hello and made our way to the conference. It was held in an equally impressive marquee that was situated around the side of the main building.  As we went in we were greeted and book in by Rhodri.  We put our names on a “Hello my name is …” sticker and popped it on.  Immediately we spotted Abby & her husband James, Adrian & his wife Sue, Ellie and her mum Mary. I had met Abby, James, Adrian and Sue last year so was meeting Ellie (and her mum) for the first time. All we stood around with a cuppa in our hands having a good old chat.  It didn’t feel like it had been a whole year since we had met for the first time. That might have something to do with interacting via social media over the year.

Before I go any further PLEASE forgive me if my memory fails me and I don’t mention you. We saw a few more familiar faces arrive, Phil, Jules and her husband Lee. Other people introduced themselves as they were unrecognisable due to their profile pics not showing them, for example Steve (and his wife Suzie). A short while later Lydia arrived. I also met Alyssa at some point too.

Soon it was time to take our seats and Paul opened the day, explained the open format, he asked us to write up the type of things we’d like to hold sessions on and to pop the sticky notes on the board. The board filled up rather rapidly with lots of ideas. During this time I noticed that my BG (blood glucose) was dropping so I was testing and treating with Jelly Babies. I did this a few times and it just kept dropping.  Alex must have noticed me stuffing my face with sweets and from the front mouthed to me “are you ok?”. Thankfully, they had started to rise back up so I was able nod my head (thanks again Alex for making sure I was ok). This is one of the great things about being in a room full of people with diabetes, they know exactly what’s happening. I wasn’t just being rude rustling around in my bag for my sweets, I needed them. It’s great to be with people who just “get it”.

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And were off.

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Get writing people.

I had two things that I had gone to the conference with that I wanted to know more about. 1) I wanted to know how to start exercising, as someone who does not exercise, because I don’t know how to work things around my insulin and not go hypo (short for hypoglycaemia or low blood sugar) for hours later.  I used to go to the gym years ago but I’d end up consuming more than I was burning off so I didn’t see the point in going anymore. 2) How others dosed for those “tricky” meals that include carbs and fat, like pizza. Dosing so that you don’t go hypo before your body finally decides to release the carbs and for the 4 to 6(ish) hours later when it’s still releasing the carbs.

Alex started to pair up similar ideas so the sessions could be arranged.  We all had a voice in the arrangement of the day so people would be able to attend all the sessions that were most important to them. My queries went into the Sports and Exercise session and the Food/Diets session.  Thankfully they were being held at different times so I was able to attend both. We were also encouraged to “vote with out feet” if a session wasn’t for us and go to another discussion or grab another cuppa and have a chat with someone. Tea and coffee was on offer all day. I’d love to know just how many cups of tea/coffee we all got through over the 2 days.

And so the itinerary was set, by us.

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I went off the the Sports and Exercise session which was chaired by a rather nervous Paul but he did a great job. It was a very popular subject.  Allun went to the Mental Health session whilst I was at this one. Whilst listening to the conversations it became apparent that exercise was definitely made easier if you used and insulin pump and being able to set temporary basal rates (TBR’s) and even suspend insulin supply if necessary, I’m on multiple daily injections (MDI). It was there that I found out that Ellie’s mum, Mary, was a fitness instructor and helped T1’s start exercising. I knew I needed to talk to her. A conversation did start over the table but we were having trouble to hear each other amongst the other little chats going on, so we arranged to catch up later, we did and connected via social media so we could chat at a more convenient time. I was a little excited now that I was going to be able to start some sort of exercise in the near future, only a little bit lets not go crazy!! 😀

We had a game of BGBingo and a cuppa. Some chooses a random number, we get out our glucose meters, check our blood and write the number with our name on a sticky note, then stuck it on the door. If you weren’t in range you put your note on “the naughty step”. Don’t worry it’s done very tongue in cheek and there were a lot of people on the naughty step, so no one was alone. At the end of the conference two people we going to win an Abbott Freestyle Libre, 1 who was the closest to the chosen random number and someone off the naughty step, so it’s not all bad. At the end of the GBDoc tweet chat every Wednesday evening there’s always a round of BGBingo.  Last Wednesday (2nd March) I actually won for the first time ever and was only 0.3 off the chosen number, I was a little chuffed. 😀

I then went off to the Food/Diets session hosted by Paul,  and Allun went to a CGM and Pump (Tech) session hosted by Tim, more tech sessions kept being added in as they were so popular. The main topic of conversation at this session was the low carb high fat diet (LCHF), some people needing to bolus for protein and how much (percentage), some others not needing to bolus for it and lots more information.  One girl shared that she (I do follow her on Twitter but I can’t remember her name atm) needed the complete opposite – high carb low fat. It just goes to show just how different we as diabetics/people with diabetes are. There don’t seem to be many hard and fast rules when it comes to diabetes. I’ve often said if there was a rule book for diabetes, diabetes wouldn’t have read it!  Again a lot of the conversations covered how people did things using their pumps for certain meals, combo bolus, multi-wave bolus, square bolus, extended bolus (I think all those names are correct, I’m sure someone can correct me if I’ve got them wrong or missed some out). All of these things can’t be done with MDI. Since using the Libre I have recently started splitting my basal doses to try and emulate this but not always with much success, it’s a new learning curve for me. During this session I was chatting to the woman (Karen) next to me, realised she was on Twitter and decided to look her up only to discover I was already following her!

Then there was lunch. Lunch was a buffet, it all looked and tasted fantastic. Lovely filled wraps, sandwiches and bagels, quiches, onion bhajis, spring rolls to name a few, cheese cake, and a big platter of fruit, yumm!! I must admit though my first thought was “where’s the salad?”, then “what are those who eat low carb going to eat?” I obviously wasn’t the only one.

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You could tell the ones with function pancreas’ in the room, they were the ones with a mountain on their plates. Ahem, Allun!! 😀

Time for the final session of the day. Allun went to the tech “hacking” session. Paul and Adrian had arranged for Adrian to hold a Freestyle Libre session as well during this time. Kirstie (not on Twitter) went along with Adrian to answer any questions people had. It’s always better to get first hand information from the people who use a medical device as they are living it day to day, unlike a sales rep. I decided to join in this session and also share some of my experiences with this.

Once all the sessions were over we got back together and had a summing up time.  After which some people made their way home, some back to hotels to get ready for the evening and some people stayed and chatted.  We went for a quick freshen up and a change of clothes for the evening.

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I’m ready.

We hadn’t been there long when Lavina arrived, we met for the first time last year at the first PWD conference. Hugs and hello’s were said.  We stood chatting in a group when a young woman came up to me and said “Hi, Nic how are you?” I don’t know what my face was like because it was swiftly followed by “I’m Jo… @Yoga_pumper!” The penny dropped and there were hugs all around again.  It’s so great to put a real life person to a picture and Twitter handle.

A 3 course meal had been previously booked for approximately 60 of us.

For once at a meal table the type 0’s (non-diabetic) were the odd ones out. Usually at a meal table I am the only one sat there carb counting/estimating, checking my blood sugars, and injecting insulin before I can start my meal. It was great to see everyone else getting their blood glucose machines out and taking insulin etc. At our table there was Abby & James, Phil, Paul, Steve & Suzie, Lavina and Jo. We had a great meal whilst chatting.  After stuffing our faces several people arranged to meet in Nottingham for a few drinks.

We eventually met in the Canal House, just a 10 minute straightforward walk from where we were staying. I thought it was fab that there was a real canal with boats in it. We had to go over a little bridge to reach the bar. There was rock music playing, I knew that this was the kind of place our 20 year old would have loved so I took a little video and sent it to her, yep she loved it.

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People slowly arrived and we all sat about chatting. I think I spent the majority of the night chatting to Phillipa about insulin pumps. At midnight Allun suggested we leave. Where did the time go?

Day 2

As I arrived two familiar Twitter faces were already there, Nick and Kevin, so I introduced myself. Day 2 started of pretty much the same as day 1, we wrote our names on stickers, had cuppa’s and chats then sat down to decide the agenda for the day.

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Today we had a group photo (this was originally going to happen on day 1 but as we were all so busy it got forgotten about). It was worked out that between us we had 1000+ years of diabetes experience. Going from 50+ years down to 5 years or less each. I was in the 10+ years group. Actually I’ve had diabetes for 13 years today (8th March).

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Two people alone had 101 years of experience between them. Lis with 51 years and *Pat with 50 years, amazing!!

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Pinched from @LisWarren

 

Onto the sessions. This time I wanted to know about transitioning from MDI to pump, how to go about it, what to expect when asking for a pump. Again tech was an extremely popular subject, this and MDI to pump were put together during the first session.

Mark (I believe) had been using an insulin pump for only 9 months so he kicked off the session and explained his experience of starting a pump. A young lad in the group said that he was starting on a pump in the next week so had a few questions to ask too. Lots of people were able to share their experiences of using various different pumps. Some that are used in conjunction with continuous glucose monitors (CGM).  Every person who was already using a pump sang its praises and said they would never want to go back to MDI. Advice was given to make sure others insured their pumps and it was noted to check out travel insurance and household insurance to make sure it was covered. Some companies would send replacements for free but not all.  How long they were guaranteed for was also talked about and was different depending up the medical company. Hints and tips were given for travelling (x-ray machines and body scanners etc, hand luggage etc), using in hot/cold weather.  The discussion then moved onto CGM in the cloud, X-Drip and Nightscout. Kevin, reluctantly at first, gave information on his experience of using this. It was extremely fascinating listening to him explain all this even though I don’t use a system that can show my blood glucose on a watch. There’s some very clever people out there in the diabetes community.  Open loop (suggests corrections etc for you) and closed loop (does the corrections for you) was also discussed and people’s preference if they were to use either. All very interesting stuff to learn about.

Just before the start of the next session I heard another “Hello, Nichola!” I turned around to another unfamiliar face and was immediately informed “I’m Fluffy Monkey“. Ahhh!!!! Hello’s continued. Again, it’s always great to put a real life face to a picture. I’ve just realised though Fluffy, I didn’t ask you what your real name was, DM me :D.

The next session I attended was about diabetes and hormones. I was expecting it to be mainly women but a few brave men joined the group. The age range of people varied as always during the sessions. Hormones effect your blood sugar levels when growing up (male and female), as a woman of child bearing age and the more “mature” woman (The Big M). To be honest I’m not sure if hormones are an issue to males at any other time other than when growing up, no one said. Sarah kicked off the discussion and I think everyone had something to say about how hormones effect their blood glucose levels and even mental health. It causes numbers to go sky high and stay that way for a time or to run low so people were fighting off hypos for days at a time for “no apparent reason”. I think it was very cathartic for us all to know that not only were we going through day to day life with diabetes but with the same problems that come with life and diabetes too.

Cuppa break!

Whilst having a cuppa @lizabetic came over and introduced herself (another person on Twitter that I follow that I didn’t recognise). We chatted about the first session, MDI to pump, she had realised that we were facing the same difficulties about wanting to use an insulin pump but not having got anywhere. A lot of our reasons were very similar. I’m so glad that I put that subject forward as there seems to be quite a few people who also wanted to know the same.

Lunch! This time I think the message about low carb had been received.  Lunch included salads, cold meats, chicken satay, chunks of salmon, grated cheese, egg etc, cheese cake (lush) and another big platter of fruit. My plate came back a bit fuller this time. 😀

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Yummmmm

After lunch, I chose to go to the complications chat.  Several complications were mentioned, diabetic retinopathy seemed to be top of the agenda. A lady (I don’t know her name sorry. *I do now! 😀 Beccy) explained about the laser surgery etc that she was currently going through along with other personal information about her life with diabetes. Shaun, who had joined us the previous evening also, also explained about his experiences. A lot of questions were asked about other complications including heart disease and dupuytren’s contracture, which I had never heard of before. Towards the end of the session Paul came over and after a short while asked how many people, in the group, had had a problem with a frozen shoulder at some point. The answer was a lot! It seems that people with diabetes tend to be susceptible to a frozen shoulder.

Whilst having a cuppa, during some point in the day, I went and sat and had a chat with Jules at the table that had been set aside especially for the “queen” of the day.

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I can’t believe how quickly the day went, before we knew the day was nearly over and it was time for the summing up of the day. Allun and I went and found our seat. I thought it was a good time for a selfie and Phillipa thought it was a perfect time to photobomb us. 😀

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Hello!!!

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Summing up.

After a fabulous weekend it was time to travel back home. We had had great weekend away, it’s not very often we go very far without the children, thank God for grandparents. Both of us had taken in a lot of information over the weekend and talked about it most of the way home. From what Allun has told me its also a good weekend for the partners of those with diabetes. He had also learned a lot about life with diabetes, the tech out there to help live with it and many other things. Thank you GBDoc and Team Blood Glucose (TeamBG) for arranging a fabulous weekend.

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The sunset on our way home.

 

* Updated 12th March 2016

 

 

 

 

 

 

 

 

 

 

 

 

 

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There’s never a stupid question.

I’ve had type 1 diabetes for nearly 12 1/2 years now.  When I was rushed into hospital and diagnosed I had no real knowledge of diabetes. My only “knowledge” was if it was going to be the one where I’ll have to inject everyday (my worst nightmare) or the one that I don’t, the was the extent of my knowledge. I got “my worst nightmare” type 1 diabetes which is auto-immune which means my own immune system attacked healthy cells and caused diabetes. I remember there being a girl when I was in high school who had diabetes and I just recall that she ate a Mars bar before games lessons, that was it.  I had no idea why or how they were different. I had absolutely no idea that there were any other types of diabetes too. I mean, I didn’t even know what the two were called, why would I?  The Monday morning after I was taken into hospital (I went in on a Saturday morning) it was explained to me by my consultant that I would have to inject for everything that I ate/drank, I crumbled. Fair play, to my then consultant (he’s recently retired), he was very gentle and kind in explaining. He even managed to make me laugh by “launching” a needle into his own abdomen to demonstrate how “easy” it was to inject, because due to my limited knowledge that was my only concern at the time. I know that would have horrified some people but it did at least stop the tears for a while.

For years I just took what my health care providers told me as gold and I did the best I could, as I was told, like a good girl. I kept myself on a very strict and restricted diet. I went through a successful pregnancy 10 months later and have a very healthy 10 year old. No one told me either that there was a honeymoon period after diagnosis. I can’t remember asking any questions and so I never took ownership of my diabetes.

Overtime my insulins changed and I self taught how much insulin to give by looking at the portion size and just knowing me, I was initially given base doses for each meal time to work with.  Things were fine and I would have a clinic appointment at the hospital once a year. Eventually things started to go downhill and my Hba1c started rising, my team were concerned and started to monitor me approximately every 3 months.  When it wasn’t improving I was asked to see a dietician again and have a bit of a chat about carb counting. I wasn’t aware of carb counting at all.  I didn’t know anyone else with diabetes to ask either.  To be completely honest I think it was more down to burn out and dealing with this by myself day to day, night by night. In fact I wasn’t even aware that it was burn out then as I didn’t know this existed until recent years. Just looking back it makes sense as to why I’d been so good trying to “control” my diabetes for years and then I just slowly gave up caring really what the numbers said.

I was introduced to Twitter by a lady from my church to keep up to date with events at church. It wasn’t very long after, and I don’t recall how, that I came across other people with Type 1 diabetes and eventually the diabetes online community or #doc for short. Slowly I’ve learned more about my diabetes via the the articles and blogs shared. Also by other people’s experiences about their diabetes in real time through their tweets, not saying “woe is me, give me attention” but just sharing what real life with diabetes is like. It literally has its ups and downs on an hourly basis (sometimes minutes). I’ve learned that it’s not just me, I can’t “control” my diabetes but I CAN manage it, that I’m not necessarily getting it wrong, other’s do make mistakes also and sometimes its just diabetes, etc.  I’m sure many of you can add to the list of “realisations” since finding others with diabetes. Through finding the doc Ive been made aware of websites that help and therefore conferences and discovery days which have been really helpful. I know how to use the internet, have done for years, but as I took all my health advice from clinic I never sought out any information online, why I do not know. Stupid huh?

There have been many times that I think I should just ask someone online and haven’t only to come across someone asking the same question and getting lots of helpful responses and support, or the subject has been covered in a Tweet chat.  It’s good to know that I’m not just being dumb and it’s a learning curve for all of us.  I need to remember that other’s didn’t know the answers once and had it explained to them by someone else.

Since finding the doc I have also recently starting to download the information from my blood glucose (BG) monitor and take it into my clinic appointments armed with questions and probably answers too. I’ve become aware of pumps for adults.  I did know, in recent years, of children with pumps but at that time I wasn’t aware that they were also used by adults.  I now know a bit about Continuous Glucose Monitors (CGM) etc. I have used one and at present I have a Freestyle Libre. I can’t list all the little bits of information I’ve learned too that help with the day to day of living with diabetes.

So, since I now download my BG monitor information, I know I can do this with a CGM/Libre. My next appointment is coming up and I’ll be able to go along “armed” with this information too. I’m interested to see if it has helped me to lower my Hba1c more, it has been coming down very slowly but I do want it lower and I’ve been trying really hard, even more so now that I can see what’s happening with a graph. I have learned so much already from the information that it gives me. I slip up from time to time but I’m only human and it’s not always my fault. It’s diabetes and it doesn’t follow the rule book.

Having graphs to look at I’ve recently been taking a closer look.  Only last week I noticed the words “standard deviation” at the bottom of the graph. Oh dear! I don’t know what this means!! I thought “I need to ask someone, but I’m going to look like a right ‘thicko’ when I ask all these knowledgeable people in the doc”. Anyway I plucked up the courage and bit the bullet and went ahead and asked about standard deviation.  I’m glad I did. I’m not the only one who’s wondering about it and its usefulness.

There are lots of questions in the past I didn’t ask and I should have.  I’m aware that I’ve still got a lot to learn, as I read somethings and I don’t fully understand it all. I just hope I can pluck up the courage to ask next time and therefore help myself or someone else to know more about managing diabetes.

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“I can” flatten a juice carton in a few seconds flat …

My bedtime BG was 16.6mmol, which isn’t unusual on a Sunday. I usually get it back in range before bed but it just hadn’t happened this time.  I had a correction dose and decided to set the alarm for 3am to make sure the insulin had done its job and to double check that I wasn’t going too low.

Before I know it it was 3am and the alarm was waking me (quite often I’ll sleep through it).  I dug out my glucose monitor and did the usual. The reading was 9.5, which I wasn’t expecting, the meter suggested a correction. This has happened before and was more than comfortable with the dose. So I delved into my bag for my insulin pen. I rummaged and rummaged and couldn’t find it.  So I sat up, pulled the bag onto my lap to look inside it and I still couldn’t find it. I must have left it downstairs after the earlier correction dose. So off I went downstairs, I had contemplated leaving it and dealing with whatever the number was at my usual “get up” time but reprimanded myself for being lazy and wondering just how high it would be by then.  I looked for the pen downstairs but couldn’t find it there either.  I went back up and looked in my bag again just incase I’d missed it the first two times, and no it still wasn’t there.  I decided to dig out my old pen and look for my other one in the morning, so back down stairs.  I dialled up the dose, injected it and went back to bed expecting to now be awake for ages.  Thankfully I dropped off quickly.

Two hours later…

In the instant of waking up and thinking that was an odd dream, I’m feeling really “off”, I’m too hot, I’m shaking and my vision is blurred and not sleepy blurred, I realised that I was hypo and very hypo too.  The only reason I checked my BG was to find out how hypo so I could gauge how much to treat it.  The monitor screen showed 1.4mmol with 2 hours of insulin on board!!! (Argh, how, what? Really wishing now that I had my CGM sensor on, if at 3am I had seen a 9.5 with a downward arrow there is no way I would have corrected. I probably would have reset my alarm for another hour and checked then or let the CGM warn me.)  Thankfully I had cartons of juice on the bedside cabinet, I ripped the straw off with my shaking hands, eventually got the straw cover off and inserted it into the carton. I drank the whole lot without letting any air back into the carton and totally flattened the carton.

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Unless it was against another #doc member. Then we’d need a stopwatch. 😀

I then got another one, ripped the straw off it and put it in the carton. About half way through I managed to stop myself and made myself wait. I think Allun’s only knowledge of my hypo was him trying to move the quilt, unsuccessfully, due to me being led on top of it trying to cool down. Thankfully my numbers came back up very quickly.  By now I only had about an hour before I had to get up.  Again, thankfully, I did get back to sleep and when the alarm went off again I woke up with a 6.1mmol.

So that’s how you flatten a juice carton. 😀

At the time of starting this blog I hadn’t signed up to the Diabetes Blog Week as wasn’t sure if I’d be able to do every day due to commitments and family “busyness” but I thought I might as well try. This one isn’t really a hugely positive “I Can” but I thought it would add a little humour to my shock of a 1.4 BG reading.

So… “I Can” flatten a juice carton in a couple of seconds flat!! 😀

Update … I did find my pen the following morning, I must have dropped it off my lap and onto the fold down bit of the recliner. So when I closed the recliner my pen disappeared from view. I’ve done this before with my glucose meter so I should have known really.recliner

My first day with a CGM :D

I was actually putting off getting out of bed this morning but also wanted to get started too.  The only thing holding me back was my stupid nerves. I wasn’t nervous about actually inserting the sensor, I was nervous about doing something wrong (stupid I know, especially in hindsight).

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I got everything out on the sofa and looked through the manual, again, about inserting the sensor. I put a brand new battery in the transmitter, switched on the receiver and then noticed the lightening symbol and got the manual out yet again. Panic time (again!!). My first thought was “oh no its not working”.

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Ok, so Jason said I could contact him if I had any questions. So out comes the phone and onto the Twitter app. I had a quick response saying I needed to reconnect the transmitter. I have no idea how and so I send another question. Right don’t be silly Nic look through the menu and hey there it is, easy lol.

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Reconnecting…

"Problem" solved!!

“Problem” solved and ready to go :D!!

Ready to go…

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Ok, so area on my tummy chosen, cleaned and ready to go.  All I need to do now is to ‘STOP SHAKING YOU STUPID HANDS!” (that was me talking to myself at the time :D).  I’ll try my arm another time, with these stupid shaky hands I think I’m going to need 2 hands today.

Ok, 1, 2, 3, go! (and yes I did count 😀 )

and go!!!

In position…

and go!!!!

and go!!!!

I heard the click and felt the sensor go in, nothing to really worry about.

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A small bleed, but it soon stopped.

A small bleed (reassured again via a Twitter message) , but it soon stopped.

My shaky hands didn’t help much when attaching the transmitter. I didn’t notice the click as it connected so I sent a photo and another question via Twitter & was told its fine and to check that the hour glass was on the receiver, it was and so I’m good to go. Just needed to wait for the first calibration in an hours time.

Count down to first calibration.

Count down to first calibration.

Here we go, first calibration.

Here we go, first calibration.

Not the number I really wanted to see but I think the self induced "stress" has helped a little. :D

Not the number I really wanted to see but I think the self induced “stress” has helped a little. 😀

That's 1 hour and 2 hour calibration done.

That’s 1 hour and 2 hour calibration done :D. Next one in 8 hours time.

So far today’s numbers have been pants, (way above the grey shaded target area). it’s highest so far 16.9mmol at midday.

Now (3.45pm) it’s at 5.8mmol and dropping. Watching it could become quite obssesive.  So far the best thing is knowing which direction my BG is going.

In real life I’m pausing this blog & will continue “My first day with a CGM” later.

* * * * *

Only 10ish minutes later and the CGM vibrated to let me know of a projected low.

Predicted low.

Predicted low.

Next came the 10 hour calibration and the readings are not far apart.

10 hour BG calibration.

10 hour BG calibration.

CGM reading moments later.

CGM reading moments later.

In real time again now (9.18pm) below is the last 10 hours. As I said above it didn’t start too well, after a very late breakfast. You can see where the predicted low was and I was able to prevent a possible hypo (yay!!!).

First 10 hours of use.

First 10 hours of use.

Below is since my evening meal until very recently. I’m liking this one :D.

Since last meal this evening.

Since last meal this evening.

One thing for me to remember is not to forget to take the receiver upstairs with me instead of leaving it on the arm of the sofa, oops.

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Thanks for showing interest in my very first day with a CGM.

CGM Sensors arrive today!!

I woke rather suddenly after a dream before 6am. Because of the dream and the sudden wake up I thought “am I hypo?”. So I fished my meter out of my handbag and my meter told me that my BG was 6.8 to my surprise.  I tried to settle back down but all that kept running through my head was that the sensors for my CGM (new to me, but very generously given to me by its previous owner Jason who I was put in touch with, via Twitter, by Dave) [ In real time 12.10pm – I heard a knock on the door whilst typing this up…THEY’VE ARRIVED, the sensors have arrived!!! Just need to wait for hubby to come home in a bit with some new batteries, I also sent him a gentle reminder.]

So lets go back a little, to the 12th March. I was just flicking through Twitter when I came upon a Tweet by Dave, which you can see below and my nervous/cautious/excited reply …

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Thankfully, for me, no one had “beaten me to it”.  Details were passed on for delivery to me. I did panic a little at first thinking I wouldn’t be able to buy the sensors but soon got over that with encouragement from Jason (thank you very much for that).

I rang Abbott, who asked me to ring back once I was in possession of the CGM and they said they would register it to me, but for now they took my details so it would be easier to process once it had arrived.

The CGM arrived on Tuesday (posted at no cost to me, as the Tweet above says, a very generous man).

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I then rang Abbott back, registered the CGM and ordered the sensors.  I was told that they would arrive the next day, it all went very smoothly.

As I was unable to sleep this morning, which was annoying and very unfair as I’m already enjoying my Easter break, I thought I might as well get up, take a closer look at the CGM manual and have a look on Youtube for some sensor/CGM videos. Which I did find & watch. I have to admit I am now a little more relaxed (for now) about it all after watching how easy it is to do. I suppose my main concern is messing up the sensor and needing to replace it. Hopefully this concern will be totally unfounded.  Jason has offered to be on hand if I have any questions (I have asked a couple already), which is reassuring.

So here is today’s delivery…

My precious!!

My precious!! 😀

and the text I then sent to Allun…

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Hurry up and come home now Allun!! 😀

To be continued…

So my husband has blue hair!!!

Continuing on from yesterday’s blog…

This is my husband Allun before his fund raising hair dying began.

Let the bleaching commence.

Let the bleaching commence.

Our very camera shy friend Sian arrived and at 1.15pm the bleaching of Allun’s hair began.

On it goes.

On it goes.

              Now to wait...

Now to wait…

Time for a cuppa and a hot cross bun. Every now and again Sian checked to make sure everything was going to plan.

Looks like its taken good enough. Time to wash it off.

Looks like its taken good enough. Time to wash it off.

It's done its job!

It’s done its job!

Now for the blue, eek!

It looks more purple to me at the moment.

It looks more purple to me at the moment.

Yep, definitely looking blue.

Yep, definitely looking blue.

Hmm......

Hmm……

...I think this is going to work.

…I think this is going to work.

It's a waiting game again.

It’s a waiting game again.

The time has come to see after washing the dye off.

I think we can safely say that it has worked. I only have to be seen in public with him for 4 weeks now!!

I think we can safely say that it has worked. I only have to be seen in public with him for 4 weeks now!!

As soon as it was done his ‘Tomodachi Life “Mii”‘ was changed by our daughter on her game.

Tomodachi Life Mii

Tomodachi Life Mii.

It you would like to sponsor this mad act please visit his Just Giving page.  All funds raised will go to JDRF (Juvenile Diabetes Research Foundation). Or please see previous blog for the reason behind this. Again thanks to everyone who has donated and a very special thank you to Sian for getting her hands blue.

The dye didn’t take so well to the sides or “goatee” so they were shaved off.  This is how he looks now, ready to face the world.

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Hubby’s Blue Hair

So it’s the day before my husband Allun has his hair dyed blue and keeps it like it for 4 weeks!!

You may be wondering why he is dying his hair blue.  We have been to a couple of JDRF discovery days where we’ve learned about research into the cause of diabetes, treatment and tech past, present and for the future.  People have also talked about things they have done or are planning to do to raised awareness of diabetes and to raise funds to help JDRF continue their research.  Nearly all of the sponsored things people have done personally or as part of an event usually include some physical activity.  Allun wanted to “do his part” to help raise some funds but due to a damaged knee my hubby isn’t able to take part in these type of things.  So he thought about what he could do. He eventually came up with this ridiculous idea of dying his hair blue.

So last week we went and bought the blue dyes from Blue Banana.  Whilst we were in one of our eldest daughter’s favourite shops, looking slightly out of place, a shop assistant asked if she could help, while Allun was looking a bright hair colours.  This,at least, gave him his first opportunity to explain to a stranger why he, a 47 year old man, was looking at blue hair dyes. She listened intently and then suggest a few colours.

This is the colour that he chose, no particular reason for this choice other than the colour.

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Tomorrow our friend Sian is coming to first bleach his hair then add the blue dye to it. The dye is semi-permanent, so he should have enough in the two pack (& not a large amount of hair) to keep it going for 4 weeks. I shall post a blog, including photos, with the process.

I’m off work at the moment as it’s half term. Allun suggested a shopping trip to a large Swedish store (Ikea :D) this week. It was then that I realised that I was going to have to be seen with him in public and that I should have started up my own Just Giving page to cover it :D. It will certainly be a talking point.

If you would like to sponsor him please visit his Just Giving Page. At this moment in time he has raised 56% of his target of £150.00.  Thank you to everyone who has sponsored him so far.

Keep an eye out for the blog & pics.


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